Friday, May 6, 2011

The Update You're All Waiting To Read

Franklin got evaluated yesterday on speech and for sensory processing disorder.

He qualifies for the program!

What is Sensory Processing Disorder? Here's a link to a short video that I thought was very informative (and easy to understand as it's made for kids)

Basically, sometimes when people are processing information it doesn't process correctly. Lines get crossed or things go too fast or too slow.

For example:
A neurotypical person hears the vacuum cleaner and it sounds you would expect a vacuum to sound. Someone with SPD might process it as a nothing sound (like, barely register it) and another might process it as pain.

Some things they noticed about Franklin:
- They showed him how to play with a toy and then tried to get him to play with it another way...and he wouldn't do it because that's not how you play with that toy. (Stefan realized last night that this is why getting him to drink milk out of a glass is so hard...he's ALWAYS had it from the bottle. To him, that is where you have milk)
- He tuned them out a lot because he wasn't finished doing X Activity. (This is why discipline is SO HARD! He doesn't distract.)
(those two things they want to work on...being able to stop an activity even if it's not perfect)
- He's still a bit behind on language.
- When he's upset and calming down (he had a tantrum while they were here) he makes this specific tone noise (a whining noise) They said that for him that sound feels good. One of our goals is to give him other ways to calm down.
- They want to work on his pretend play. He doesn't do it.

- He plays rough with people because that's how HE likes to be played with...he doesn't understand that not everyone needs the firm touch that he does.
They said we have to go outside AT LEAST twice a day. (It's about to be too hot to go out in the afternoon) They want him to do more heavy work activities and find ways to get that deep touch (so he stops throwing himself off of the couch).
Basically, I feel really good about it. Right now someone will be coming out weekly to see him. (The ECI Specialist) The Speech Person and OT will come monthly right now.
They said he's perfect for the program. He's not an extreme case but there's enough there that we can get tools to help him. That's all we wanted, really.

What was the evaluation like? They came in (armed with a suitcase full of toys and books with pictures) and sat on the floor and played with him. They alternated playing with Franklin and asking us questions. And then they sat back and watched him walk around and play. It was really low key.

I'll be honest, I had to keep reminding myself that they were here to evaluate FRANKLIN and not ME. I guess it's ego...but no parent wants to admit that their child is less than perfect. I've also been struggling with "is there something *I* did wrong?" Every time they asked, "Does he do X?" and I had to answer in the negative I felt the need to defend myself. That was hard for me.

Things are better already. They gave us some things to think about and a couple of tools. The Occupational Therapist said that if I observe him I can learn what he needs. When he's throwing toys it's because his muscles need more stimulation so I should find a "heavy work" activity to help tire them out. (Like, pushing/pulling/lifting heavy things...we filled his little backpack with cans. Last night before bed he had to "wheelbarrow walk" across the living room) When he's crashing around and jumping off of the couch it's because he needs that deep touch. Like you get from a hard massage, the nerves interpret it the same way. So, I can roll him tight in a blanket or massage his legs.

This also explains why spankings rarely work. He LIKES the deep touch, so a spanking barely registers...or it registers too high. There is no middle ground. 

Please ask questions!


  1. Hey you! My oldest and K both have SPD! He also craves deep touch, something to consider (and they may have already mentioned it) is a weighted blanket. That way he gets the extra touch sensation while he's sleeping, and doesn't AS much during the day (theoretically.) They're kind of expensive to buy, but we made one by sewing three sides of blankets together, then sewing columns up, so you can put beads in all the way at the bottom, then sew a line across and put another layer of beads in, and so on (call me if you have questions.) Beads are important as the first one we made the OT suggested beans, and the first time someone pukes on it, the beans swell up in the wash and it's not They said to use 10% of body weight plus one pound for the blanket, K's blanket is about 4 pounds. T's is 15. Maybe that would help?

  2. Yay for you for getting him evaluated! I remember feeling the same way during Edan's eval, when I was answering so many questions with "No he doesn't do that either". One of the things I love about our OT now is that she is so encouraging and respectful, and careful to emphasize that none of this is because of anything I did wrong. I felt so relieved after the evals - as in, now we know what's going on and how to help, so I can stop worrying about it and go back to just being his mommy. Awesome video, by the way. Keep us updated on his progress!

  3. That's great that you had him evaluated. It's going to make your life less frustrating now that you can get some answers and solutions. I had never heard of this but just had a friend tell me both her boys have it. Now I wonder if it's more common in boys.
    Good Luck and I hope you post on his progress with the extra help he's getting.

  4. Blessings to you and your family as you go through this. Know this. You ARE a great mom! The fact that you see and acknowledge these things and are getting early intervention are such heroic things! As a teacher and home school tutor, I have seen so many parents who deny or ignore the problems and try to "cover" them up or explain them away! You are doing your child a huge service! Good for you!

    Have a great Mother's Day weekend!

  5. Wow, the way your fb post the other day sounded and the way this blog post make it sound are totally different. As in, the difference in kids jumping off the couch and a kid "throwing" himself from it just to get hard touch. Sorry sorry sorry a thousand times that I sent you that message acting like it's no big deal when obviously it is. I was, in all honesty, trying to make you feel better! I'm really happy the evaluation went well even if it was a little hard on you. It's awesome that you'll have the right resources to help him.



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